Sunday, September 7, 2014

Val's birthday


Val's birthday weekend began with an appointment Friday afternoon at CancerCare to have her port removed - yahoo, no more need for that! Yvonne came over for a fun dinner that evening. Saturday we tidied out the garage (oh joy), had leftovers for supper and watched another episode of Foyle's War, a BBC WWII drama we are really enjoying. This evening we're having dinner with Randa. In the meantime, my parents and sister have called, and Erika dropped by this morning with a tray of birthday cookies. And the weather is sunny, so it's a good day here at our house! 

Birthday cookies from Erika, Eva and Jacki. Delicious! 

Val playing Scrabble last weekend in the gazebo at the cottage. She won. 

Val's Birthday Eve gift was a Scrabble mug. If she finishes the drink,
she gets a Triple Letter Score on the bottom of the mug!



Val's Birthday gift was a cordless rechargeable snow blower. She can't wait for the snow to come! 
Val at the cottage last weekend getting ready to head outside in the drizzle. Look at those curls under the hat! 

Saturday, August 30, 2014

Update


Val met with Dr. Brandes (medical oncologist) earlier this week. He is very pleased with her current condition.

The CT scan was clear, her blood work numbers are good, and her skin has healed remarkably well from the vicious radiation treatments back in May. Her fatigue remains significant, which is the long-term effect of the radiation treatments likely aggravated by the Letrazole (estrogen-blocking drug). In addition to having little stamina, Val has also experienced persistent joint pain and a sense of her emotions being flat and depressed. Dr. Cooke (radiation oncologist) called her overall state "Letrazole toxicity".

Dr. Brandes suggested Val go off Letrazole for two weeks and assess her state at that time; two weeks usually is long enough, he said, to reduce the side-effects and give the patient a sense of whether or not the drug is the cause of those effects. At the two-week mark, Val will consult with Dr. Brandes and determine how to proceed.

It seems, then, that the past year of surgery, chemo and radiation has done what it should: Removed the cancerous tumour and killed off obvious signs of cancer cells in Val's body. What her current condition means for the long term is, of course, not 100% clear. However, Dr. Brandes suggested she had a very good chance of not having a recurrence for a long while. Let's hope he's right.

So. We find ourselves in an odd emotional state. Obviously relieved and happy on the one hand, but peculiarly unsettled on the other. Over this past year, we have been pulled along by the urgency of medical appointments and treatments and results and doctor visits. This coming year, we will have to re-learn how to forge our own agenda and rhythm. Most peculiar, indeed.

To be noted is that Val's fatigue is a very real daily hindrance. Wanting to do things is simply not the same as being able to actually do them. We figure this will  be the reality through December.

We'll continue to keep you posted as this process continues to unfold. Thanks for being with us.

xo

Sunday, August 24, 2014

Back from holidays

The 31st of August marks our first anniversary of legally married life and is just two months shy of our 21st year of being together. Given what the past  year has consisted of for us - and particularly for Val - these anniversary dates are especially noteworthy for me. (I will leave Val to speak for herself.)

I am not one to laud a relationship merely for its longevity; not always do long years together equate to a good and evolving love. I feel fortunate, then, to be celebrating not only many years with Val, but also our genuinely happy love for each other that has, indeed, evolved over the years into a warm and stimulating companionship that makes life good.

Our holiday time at the cottage was excellent, as it usually is and especially so when we have several weeks in a row to enjoy our spot on Lake Winnipeg with each other. One of the books I read included the line, "...perhaps he saw in us what he wanted for himself, a happy marriage and the time to enjoy it..." And that is what the cottage gives us: plenty of time with each other. Yes, there is a project around every corner, and meals to make and dishes to wash, but even the daily chores seem less onerous and more enjoyable with the expanded time that seems to exist at the lake.

Now it's back to work for me. I'm looking forward to a a few revamped courses this term, and to a technology & teaching conference in Denver in October. I hope you are looking forward to your fall as eagerly.

Val has several medical appointments this coming week. It's been a full year since her first visit with Dr. Brandes; she sees him this week. We will see what he has to say. Stay tuned.

xo


Monday, July 21, 2014

On holidays

We are off to the lake/cottage for an extended time. We'll connect thereafter. Who knows: Maybe Val will even write a blog post in amongst the beauty of the great out of doors. Stay tuned...

Here's hoping you're enjoying your own summer where you are. It's blazing hot here at the moment, and close and humid. Not my favourite weather, but I don't dare complain!

xo

Monday, July 7, 2014

From folks to Folk Fest (by Amanda)


My two weeks in Edmonton with my folks (Anne and Colin) were highly successful: We had fun together and enjoyed each others' company, while also being very productive in sorting out closets and offices and outbacks. The photo below tells the tale: a good number of black garbage bags were sent to the landfill (sorry about that), several more to the recycling depot, and a car load to Goodwill. That boombox on top of the pile was diverted to the electronic waste depot, thanks to a stern message to me from Val on seeing the phone via text.

I happened to be in Edmonton while Wimbledon was on; my mother is an uber keen fan, while my father watches with interest. I haven't followed the tournament for years, but I got into it after downloading the app onto my iPhone and onto my mum's iPad. I would come up from my lower-level bedroom for tea in the morning and find Anne already on her second cup of tea and watching the live matches in progress on her iPad. As the tournament went on, we migrated to the TV to watch the more serious semi-finals on the big screen. 



Anne watches Wimbledon on her iPad. 

Watching Wimbledon on the big screen. 
For Colin, his iPad and his desktop Mac play a big role in keeping him connected to the outside world, as it is getting harder and harder for him to get out into it himself. He is a keen photographer of family and friends, and takes seriously his role to share his snaps with all of us. Here he is consulting with Anne on how to make (the damned) printer do what he wants it to. In the end, he succeeded. Phew. 
Colin gets around pretty well with a walker, and is game to do his share about the house. He sets the table and moves the laundry from the washer to the dryer. On a good day, his (blasted) oxygen tube doesn't get all caught up in this and that, and he manages to move about freely. Other times, tangles catch  him up and expletives can be heard. Nothing much unusual about that in a Le Rougetel house, I must say. 

I had an enjoyable time going through an old suitcase of my grandfather's into which Anne had put, in carefully dated envelopes, piles and piles of family photos. I left loads for Charles (my brother) and Katy (my sister) go through, but I brought a bunch home for my own files. Below is a rather sweet one of Katy (left) and me; I must be about a year old, which makes Katy about three. 

I am off to the Winnipeg Folk Festival this coming Thursday, which leaves poor Val alone yet again. If only she could enjoy what she considers the wailing of folk music, then she could come along! Her energy comes and goes, though I think it's true to say that the mind-numbing brain fog is over. However, the ups and downs of the returning energy is hard on the mind: So much to do, so much willingness to do it, yet not always the necessary amount of energy to actually achieve it. All positive thoughts continue to be gratefully received... 





Sunday, June 22, 2014

Brief update

An overnight trip to the lake saw us knee-deep in dandelions and swatting bat-sized mosquitoes. But neither of those natural wonders stopped us from enjoying the view and the change of scenery. Not even the occasional heavy downpour dampened our spirit, though it must be said that poor Val is still beaten down by radiation-fatigue fall out. Nonetheless, she whacked down a bunch of thistles and held the ladder while I climbed onto the roof to clean out the (very bunged up) eaves troughs. That's what we call a good time!

I head to Edmonton tomorrow (Monday) for two weeks with my parents. Here's hoping that Val and Holly will take good care of each other in my absence. 

Wednesday, June 4, 2014

A break in the clouds of fatigue?

Val said this evening that she is beginning to feel a bit more like herself; that cloud of radiation-induced fatigue is possibly beginning to lift. She is maybe starting to feel just tired, rather than bone-numbing, head-clouding, zonked out tired. Here's hoping! 

Maybe our visit to Riding Mountain National Park this past weekend helped move things along? For sure we had fun! 

Val, Yvonne, Bella and I had a lovely time (in a crummy little cabin, but we came to overlook the inadequacies after an evening cocktail) enjoying each other's company and the lovely scenery in this gorgeous national park. The pictures below tell the tale.

Amanda and Bella, Yvonne's dog - a lovely 4-legged
travel and hiking companion. She did 9km
with Yvonne and Amanda
on Saturday around Moon Lake.  

Val and Yvonne cooling off their feet in Moon Lake on Saturday afternoon.
Yvonne and I had just finished the 9km hike, while Val had come to meet
us there, having done short bits of two different trails. We were all
bushed after our exertions and spent the rest of the afternoon rehydrating, reading
and preparing (then eating) supper. 

Bella stuck close to us, always. 

Val holding forth on matters of flora and fauna: She knows a lot! 

Sunday morning on the Brule Trail - a lovely gentle amble. Really nice. 

Val on boardwalk by the marshy lake
halfway around the Brule Trail. 

On the marshy lake - really windy! 

Amanda hiking, with Bella.