Wednesday, October 30, 2013

Chronicles from Chemo-Land: A Guest Post by Val


Tomorrow (Thursday) will mark two weeks from my third treatment. Last week, I felt good enough to go to the Cancer Class to help out, give the odd instruction and do a pose or two myself. I love working in a team context with the other teachers and volunteers. We calmly go about the work of helping people and solving problems and we are rewarded by seeing them respond positively to yoga. Being there gave me a real boost and feeling of normalcy. I’ll have the pleasure of being there again tomorrow.

I didn’t have much fatigue after my first two treatments and I was surprised when it hit me so hard and so suddenly after the third. I guess I expected it to build gradually but it didn’t. Everyone talks about the fatigue in general terms or they say things like “you will have the worst fatigue you can imagine” and “you can’t give in to it” or “you have to give in to it and rest”!

As for the last two seemingly contradictory comments, I have found that both are true. I have gone for walks when I didn’t think I could even get up off the bed or sofa and felt the fatigue lift like magic. At other times, lying over a bolster seemed to be the only option. The trick is finding out when to give in and when not to give in!

As for the first comment about the worst possible fatigue, well I do know something about that from many of my adventurous experiences in the past. On canoe trips, backpacking trips and skiing trips, I have come to the “brink of exhaustion” many times. Times when all I could do was sit down and hold my head in my hands until the sheer physical inertia of it passed and I could do what needed doing—making camp, cooking food, swatting a mosquito…

So, I know something of that deep, physical, “stop you in your tracks” fatigue. What chemo fatigue has in addition to that, at least for me, is a bleakness, an emotional darkness and irritability. In fact, I’ve come to recognize that fatigue is setting in when I begin to feel bleak.

It isn’t simply fatigue. I think that the toll the chemo takes results in much less strength and stamina. Because I have no stamina, the fatigue can set in quickly, seemingly out of the blue. This may seem obvious, but I had to learn about it. I am learning to recognize when ordinary daily stimulation could precipitate it; e.g., a conversation with more than two people! A fragile mental state accompanies the fatigue and it is better for me to do mindless, repetitive tasks such as washing the dishes than trying to cook something edible.

My restorative yoga practice is a great help. From just lying over the bolster, I’ve built up to 4 to 6 poses in an hour to hour and a half. But, like any other physical activity, I’ve had to be careful to not over do it. What a concept, eh? Life seems to be just one long lesson in how to not overdo it or under-do it! OK, there are other lessons! This just seems to be a difficult one for me.

Hanging in

 
Apologies for the long silence on the blog. Time has been flying while energy has been flagging. However, I have both time and energy to post these pics of Val in her new fancy head gear sent by our friend Miriam from Nova Scotia. Natty, eh?

Val is hatching a second guest column, and I am noodling on a post, so check back here for some new content....soon-ish.


Monday, October 21, 2013

Three pics

Just a few pics this evening to open the week with. Fatigue hit Val something fierce on the weekend. Better today. Who knows what tomorrow will bring...

Oh look. Chester has discovered the recliner! Sunday afternoon.
It was grey and cold outside, but inside all was warm and cozy! 

Val modeling one of her Jeanie Beanies at the lake 

Val modeling same Jeanie Beanie at the lake, side view

Sunday, October 20, 2013

Posting comments to the blog

Apologies to anyone who has tried to post a comment to the blog. I have corrected the setting to allow anyone to post a comment, and every comment is moderated by me first. This will, I presume, enable me to ward off the crazies should they find the blog by accident.

Saturday, October 19, 2013

Writer's worst fear

Of course. It's every writer's worst fear: The guest columnist's post gets more hits than the original writer's posts have received in the past. Sigh. 

Friday, October 18, 2013

Guest Appearance by Val: Chuckles from Chemo-Land

Friday morning 

I had my third chemo treatment yesterday morning. I was all geared up for my steroid high—planning my walk, making dinner for Amanda, enjoying my light-feeling body and almost pain free ankle. After the first two treatments, I had a great appreciation for why athletes love steroids!! However, it was not to be. I staggered out of CancerCare on rubber chicken legs holding Jacki’s arm! At home, I couldn’t keep my eyes open and fell into a restless, semi-sleepy state over a bolster for the duration of the afternoon. I couldn’t believe how deprived of that steroid boost I felt! Luckily, a very good dinner picked me up. This morning I am happy to say that some steroid effect is still in my system so will head out for a walk today. Do laundry…love Dexamethazone! (A little parody on “love life, do yoga”) but not less yogic for that.

The day before treatment, I saw my oncologist, Dr. Brandes. He asked me if my chemotherapy experience was worse or better than I expected. I had to (reluctantly) admit that it wasn’t as bad as I thought it would be SO FAR (hoping for a meaningful emphasis) and I was hoping he would tell me if I could expect a lot worse or different symptoms, etc. as treatments proceeded. I said that there was some anxiety about not knowing. He said that he couldn’t and muttered something about funny things can happen, people have different experiences, blah, blah. Well, I thought, life in chemo-land is like life everywhere, uncertain. His comment was honest and just the thing no one likes to hear; the kind of comment that makes “alternative” medicine appeal to people because those “docs” are always so certain. Too bad they are also almost always wrong. Humans hate uncertainty. But, it is one of the most powerful forces in our lives. I’d like to think that I’m developing some equanimity about it!

Brandes has ordered a CT scan for just before my next treatment because he said: “Well your blood work doesn’t show me anything. All your numbers are good, excellent in fact. And, I want to know what is going on in this area we are treating.” Fine, I say. What’s a little more radioactivity? Bring it on!!” He looked surprised and then laughed. I like to keep my doctors on their toes and happy. I feel it is the least I can do…

Last week I managed to conduct a Level I assessment for Janine, part of which took place at the Friday morning class. How wonderful it was to be in the studio with everyone and doing something positive for our collective yoga life. Janine passed with flying colors, by the way! Congratulations are in order.

I also attended the first session of the Cancer Class. I introduced the class and then Regan took over the instruction with our trusty helpers Arlene and Erika. Erika and I had fun helping a woman with a very bad back, who couldn’t get up and down off the floor and used a walker. With her permission, Erika took some photos of her set-ups on her iPhone to remember for when I wouldn’t be there the following week because it was my chemo treatment.

So, there I am hooked up to toxic drugs through my port, eating bad cookies and drinking bad coffee (as a break from water) brought by the volunteers when Jacki’s iPhone goes off with photos from the class and cryptic messages like: “Look ok?” or “Something's wrong here”; “what about the arms?” Well, I’m happy to say that they did a great job adjusting the tougher problems. I am really proud of them—Regan, Arlene and Erika—job well done!

I can feel my “raisin” eyes setting in so that means my time on the computer is about over for a few hours at least. One of my most annoying symptoms is dry eyes. Thanks to Guruji, I have an Indian bandage to wrap my head after putting in eye drops. Thanks to Lauren and Dale Mulhall, I have wonderful eye drops and gel that Lauren said to only put in at night. I followed her instructions and good thing too. The gel makes everything really blurry and opaque but that doesn’t really matter because the extra gel sticks your lashes shut so you can’t open them anyway! My eyes feel so much better in the morning. Thanks again.

Thanks to everyone for everything you have done for us and for all the wonderful cards, emails, etc. Pass the link to the blog around as it is much easier way for Amanda and I can keep in touch with you all. I can’t promise to send out a lot of individual emails because it is tiring and, did I mention my eyes??

Love,
Val

Thursday, October 17, 2013

Sitting pretty

Today, Val completed session 3 of chemo. She experienced no high from the steroids this time,  just fatigue. When I got home from work, Val was resting. She perked up after dinner.

Yesterday, Val had a good appointment with Dr. Brandes (oncologist), who was chipper and upbeat about things. Her blood work is good and he has ordered a cat scan for just before the next chemo session; apparently that test will show more than the blood work can about how things are doing. Her numbers are all so good that they are not telling Brandes much; so he said. Hence the cat scan. Seems like good news to us. We'll go with that for the moment.

Val's new recliner was delivered yesterday afternoon, and she enjoyed a cup of tea in it in the sunroom. It will be most satisfactory! Also, the new furnace was installed last week and we are appreciating its efficiency, especially as the season is turning, and the mornings and evenings are definitely cooling off here.

We'll stay in the city this weekend, after having had a splendid weekend for Thanksgiving at the cottage last weekend. The weather was glorious and it was wonderful to be out there, enjoying the beauty of the lake and leaves and sunshine.

Hope your season is turning as it should.
Love,
Amanda